In the News
NPR
Interview on Duchenne and the family experience
CBS Miami
TV segment on Duchenne awareness and advocacy
BioPharmaDive
Article featuring your perspective on Duchenne gene therapy
Features
Susan Finazzo Leads the Fight Against Duchenne Muscular Dystrophy
Napa in Miami: Top wines for a great cause
Gene therapy for muscular dystrophy stirs hopes and controversy
‘The luckiest of the unlucky’: A Duchenne gene therapy brings hope to families — and tests the FDA
South Florida family hopes to bring awareness and find cure for Duchenne muscular dystrophy
Duchenne Diagnosis of 2 Sons Inspires Miami Couple to Launch Massive Fundraising Effort
Available to discuss:
Caregiving and identity • Duchenne muscular dystrophy • Rare disease • Parenting a child with a disability • Navigating uncertainty • Gene Therapy and other treatments • Inclusion in schools • Patient advocacy • Clinical trials • Family perspectives in healthcare