Rare & Mighty

I’m Susan Finazzo, a writer, speaker, and parent advocate shaped by years of navigating rare disease, disability, learning differences, and the systems families depend on. My work is rooted in a simple belief: children may need a different path, but that shouldn’t mean a smaller life. Through Rare & Mighty, I share what I’ve learned about advocacy, resilience, caregiving, inclusion, and helping families move forward with both honesty and hope.